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3 days ago

Two weeks ago we returned from Germany, having completed the second cycle of immunotherapy. For well over two years now Ollie has had a daily regime consisting of an enormous amount of drugs, ... See more

2 weeks ago

Four weeks ago we were at our lowest ebb. Ollie had had a massive seizure and showed no signs of recovering from it. We saw no chance of getting "Ollie" back and not only had we dropped all plans for ... See more

1 month ago

Being a parent to a child with brain cancer is like trying to swim in a very stormy sea, repeatedly being bashed against the rocks. Every time we hit those rocks we fear it is going to be the last ... See more

1 month ago

I have been holding back writing this, since I hate to end an update on a low note. But now I feel I have to.

Last Tuesday, the day after we came back from Center Parcs, we were unable to wake ... See more

1 month ago

Even by our usual standards, the last week has been a very challenging one. Two Fridays ago a CT scan revealed the reason for all the sickness and pain Ollie has been suffering recently. He was ... See more

1 month ago

The last two weeks have been really tough for Ollie, particularly last Friday when we flew home. Despite having been battling cancer for well over 2 years, Ollie has rarely been in pain, but in ... See more

2 months ago
Timeline Photos

Ollie & I are now into our second week in Cologne. We've had good days and bad, but we are feeling positive about the treatment here. It has been very unusual and quite difficult at times.
A fair ... See more

2 months ago
Timeline Photos

I'm afraid we've had more disappointing news. Despite the recent changes to Ollie's chemo, the tide has not been turned on the cancer. Yet another MRI this week has confirmed that some tumours are ... See more

2 months ago
Timeline Photos

Thank you to all who took part in "Gamesfest" in Tring recently. They raised £340 for Ollie's fund while providing an awesome day of fun. Jane, Ollie, Theo and I spent a lovely afternoon there ... See more

3 months ago
Timeline Photos

Some updates are easy to write. It's easy to give good news, but not so when it's bad. A few weeks ago Ollie had an MRI scan and these scans are the only way we know how the treatment is going. The ... See more

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